Thursday, May 6, 2010
Back in the Big Apple!
We are at it again! Gavin's 2nd cycle of 3F8 has been quit rough!!! He is so tough and handles things like he's bullet proof! We got out here at 6:00am Monday morning! Had to be to the hospital by 9:30am so I didn't get much sleep at all and we waited 6 hours to get a room to start his injection. He handled the first day very well! Still had alot of pain but he has learned to breath through it and knows just the "right words" to say to make it feel better! (which are words most parents would be embarressed to hear come from their child!!!) Tuesday was pretty smooth, no pain till the injection was done and the flush started! In saying that, he still had to use all his "rescues" (5 doses of dilauded) Wednesday was HORRIBLE! His IV blew out so they had to place a new one which was extremely painful, the pain from 3F8 started half way through injection and lasted about 15 minutes then to top that off he broke out in hives that affected his "nether regions" and the roof of his mouth! He keep screaming he was on fire :( it was pure HELL! Today has been alot better. He amazes me, watching him go through this and how he learned to breath through the pain and rather then saying, make it stop, he just askes, through gritted teeth "how many more minutes, mom" I'm telling you all.... I have given birth to an Angel! He keeps me going, makes me smile and the Love I have for this boy is a love i know I will never feel for anyone else (besides his brother, of course!!!) I'll try to update more often but life has been crazy in SL and then coming to NY is just as insane!!!! Please keep my little man in your prayers, Lord knows he deserves them!!!! Love, Jamie
Friday, April 9, 2010
3F8

Friday, April 2, 2010
This boy makes it ALL worth it!!!!
I woke up this morning feeling a bit down, a little depressed and so lonely. Gavin slept in late which gave me way too much time to think! When this amazing little man woke up the first thing he asked me was... "Mom, what's the black sonic's name?" Bet you can't guess what he was dreaming!!! Anyway, Just with that and his sweet little voice it pulled me, semi, out of the funk I woke up in!!! I decided to get him up. We went down to the kitchen for some lunch and then we went to the Central Park Zoo! This is what keeps me going! This little man and his amazing spirit, smile & strength!!! He is truely MY little HERO!!!!
Monday, March 29, 2010
Gavin get's his picture taken with a performer in times square!!!
We went to Bubba Gump for dinner! It was so good and Gavin says they have the BEST Ribs ever! Even better then Papa's!!! (shhh, don't tell Brad that!)
His FAVORITE ribs ever!!!
Inside the Toys R Us in Times Square!!
Gavin and I on the ferris wheel in times square!!! He was so so excited!
Gavin with some of his new friends! Dimitri (white shirt) and the boy in red is from Greece and can't speak english so we've never learned his name!!! (both are fighting Neuroblastoma!)
Gavin and some more of his friends. Antwanet (pink shirt) Dasia (purple hat) and Ryan! All 3 are also fighting Neuroblastoma!
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